Info Day/AGM 3rd November 2018

Our 2018 Info Day/AGM agenda has now been finalised and is detailed below. The day concentrates on treatment of MPGN/DDD/C3G both future and current plus some of the development that is taking place to bring future treatments to patients.

Date : 3rd November 2018
Venue : Rooms 7 & 5B Birmingham Children’s Hospital B4 6NH


10:30 – 11:00 Arrival/Registration

11:00 – 11:10 Steve Richardson, MPGN/DDD Support Group Chair – a short update on our group and introduction to the day’s theme.

11:10 – 11:40 Dr Edwin Wong, Consultant Nephrologist, Clinical lead for C3G within the National Renal Complement Therapeutic Centre / Chair of the MPGN/C3G Rare Disease Group – speaking about RADAR, the rare disease database, and associated RADAR activities.

11:40 – 12:10 Professor Claire Harris, Professor of Molecular Immunology, Complement Therapeutics Research Group – an overview of the pipeline of treatments that are currently being trialled.

12:10 – 13:10 Marc Uknis, M.D.
Vice President of Clinical Development, Head of Nephrology Therapeutics, Achillion – C3G Causes, disease classification & the Achillion Development Programme (Michael Geffner, M.D., M.B.A. Senior Vice President, Global Medical Affairs will also be attending to help answer audience questions)

13:10 – 14:10 Lunch

14:10 – 14:40 Hannah Lomax-Browne, Research Associate, Imperial College, London – an update on the C3G Natural Histories Study

14:40 – 15:10 Professor Matthew Pickering, Professor of Rheumatology, Imperial College, London – a general update on C3G and an update on the Phase 2 Factor D Inhibitor Trial

15:10 – 15:40 Dr Tom Cairns, Hammersmith Hospital – current C3G treatments including kidney transplantation

15:40 – 16:00 Trustees – charity business/closing remarks etc

If you would like to attend please let us know, including numbers attending and any dietary requirements you may have by contacting us via the website contact page.



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