Our 2019 Info Day/AGM will be on Saturday 16th November. Presentations will include updates on how current clinical trials for potential treatments of MPGN/DDD/C3G are progressing. The agenda will be as follows:
MPGN/DDD Support Group
Info Day/AGM Agenda
Saturday 16th November, 2019
Rare Disease Centre for Children,
Whittall Street, Birmingham B4 6DH
11:00-11:10 Intro and outline of the day – Steve Richardson, Chair of Trustees, MPGN/DDD Support Group
11:10-11:45 Disease classification and the overlap between MPGN/DDD/C3G – Professor Terry Cooke, Professor of Renal Pathology, Imperial College, London.
11:45-12:20 Natural History Study Update – Hannah Lomax-Browne, Research Associate, Imperial College, London
13:20-13:45 Oct 17th Rare Disease Pharmaceutical Conference – Dr Larissa Kerecuk, Consultant Paediatric Nephrologist, Birmingham Children’s Hospital. Birmingham
13:45-14:35 Kidney International Paper, Achillion Trial Update, Apellis Trial Update – Professor Terry Cooke & Dr Tom Cairns, Consultant Nephrologist, Imperial Hospital Trust, London.
15:05-15:45 Novartis Trial Update, National Study of MPGN Paper, National Renal Complement Therapeutics Centre Service – Dr Edwin Wong, Consultant Nephrologist, Newcastle-Upon-Tyne Hospital Trust.
15:45-16:00 Charity Business – Trustees