Our 2019 Info Day/AGM will be on Saturday 16th November. Presentations will include updates on how current clinical trials for potential treatments of MPGN/DDD/C3G are progressing. The agenda will be as follows:
MPGN/DDD Support Group
Info Day/AGM Agenda
Saturday 16th November, 2019
Rare Disease Centre for Children,
Waterfall Building,
Whittall Street, Birmingham B4 6DH
10:30-11:00 Arrival/Registration
11:00-11:10 Intro and outline of the day – Steve Richardson, Chair of Trustees, MPGN/DDD Support Group
11:10-11:45 Disease classification and the overlap between MPGN/DDD/C3G – Professor Terry Cooke, Professor of Renal Pathology, Imperial College, London.
11:45-12:20 Natural History Study Update – Hannah Lomax-Browne, Research Associate, Imperial College, London
12:20-13:20 Lunch
13:20-13:45 Oct 17th Rare Disease Pharmaceutical Conference – Dr Larissa Kerecuk, Consultant Paediatric Nephrologist, Birmingham Children’s Hospital. Birmingham
13:45-14:35 Kidney International Paper, Achillion Trial Update, Apellis Trial Update – Professor Terry Cooke & Dr Tom Cairns, Consultant Nephrologist, Imperial Hospital Trust, London.
14:35-15:05 Tea/Coffee
15:05-15:45 Novartis Trial Update, National Study of MPGN Paper, National Renal Complement Therapeutics Centre Service – Dr Edwin Wong, Consultant Nephrologist, Newcastle-Upon-Tyne Hospital Trust.
15:45-16:00 Charity Business – Trustees
16:00 Close
Attendance is free and lunch will be provided. We still have spaces available and all members are welcome to simply turn up on the day. If you have any special dietary requirements please let us know in advance.
