About Us

Browse our website to find out more about our rare kidney disease community.

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Discover what’s going on in the world of rare kidney diseases and how you can help.

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Patient Support

Whether it’s information, links to other resources or the latest news you’re after, we’re here for you.

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Working together for our rare kidney disease patients and their families

Welcome to the MPGN/DDD Support Group

We are a UK charity dedicated to providing information, understanding and support to patients and their families coping with these rare kidney diseases: IC-MPGN, DDD and C3GN.

If you already suffer from one of these conditions you will know what these abbreviations mean – if you don’t, please visit our ‘What are MPGN/DDD’  page for a clear and readable explanation! Information is a powerful tool, and you will find plenty of it on this website, including Useful Links and other external resources which you may find helpful. We aim to bring you the latest news,  events and reports from both the UK and elsewhere in the world on developments which are relevant to these conditions.

If you are 18 or over we’d love you to join us – it’s free. Our general meetings are open to all members, so if you would like to come along and have your say you can be sure of a warm welcome.


Latest news:

Public Drop-In Support Meeting

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For up-to-date news and information visit our news or join our mailing list below:

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Upcoming events

View upcoming events and dates in our MPGN/DDD Support Group calendar.

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Find out what we’re doing right now and how you can help:

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