About us

We are a charity whose purpose is to provide information and support to MPGN, DDD and C3G patients and their families.

MPGN/DDD Support Group was founded on 22nd June 2013 and became a registered charity on 14th July 2014. We are registered with the Charity Commission for England and Wales, and our number is 1157821.   MPGN/DDD Support Group is run by patients, their families and carers, all of whom are volunteers.

Our objectives are:

  • To provide information and advice to members
  • Represent all who have these diseases
  • Raise the profile of these rare diseases amongst the general public, medical practitioners, government and all relevant organisations/companies
  • Work towards improving accessibility of treatments and drugs for patients

This website will help us to achieve our aims by providing useful information, news and advice, raising awareness of these diseases and being an effective instrument of future campaigns.

N.B. Please be aware that we are not a medical website and cannot offer specific medical advice to individuals

Our current trustees and officers are:

  • Sarah Whittall (Secretary)
  • Su Brimble (Treasurer)
  • Julie Gibbs (Paediatric Voice)
  • Lewis Brimble
  • Alex Gibbs


Our medical advisors are:

  • Dr Sally Johnson, Consultant Paediatric Nephrologist in Newcastle-Upon-Tyne. Dr Johnson is chief investigator for the National Study of MPGN and principal investigator for a number of multicentre clinical research trials.

Dr Sally Johnson

  • Dr Stephen Marks, Consultant Paediatric Nephrologist and Clinical Lead for renal transplantation at Great Ormond Street Hospital (GOSH).

Dr Stephen Marks


Get the latest

For up-to-date news and information visit our news or join our mailing list below:

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Upcoming events

View upcoming events and dates in our MPGN/DDD Support Group calendar.

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Find out what we’re doing right now and how you can help:

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